JW, I've been thinking about you since reading this last week and have shared this story several times. Although I don't know you, my heart aches for you. My Dad was diagnosed around the same time as your husband. It is interesting to note that during one of the consults we had at a local CC that the RO suggested Erbitux would be used. This was before a tumor board even reviewed his case. I had read this folder before that session and have been researching ever since.

Dad is about to begin treatment at a CCC. Can anyone suggest the "list" of chemo agents I should research before we get to the planning session Monday so that I'm prepared? Cisplatin is likely, but I'd like to know what else I should research. As I'm still green at this, and this may already exist in another folder, please just redirect if appropriate?

Again JW, you have helped so many people you'll never meet and are suffering so much, it is not fair that I can only offer a thank you.


Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!