Thanks so much! we only met with the ENT yesterday and he went over everything about the surgery...man!!
there are so many issues at hand! He will have his entire right jaw removed, replaced with fibula and a leg flap inside and pectoral flap on outside with skin grafts.
my concerns are the feeding tubes, trach, etc...They have moved in with us and we will be there to care for him but it is all scary!
there are a team of 4 surgical teams to do the surgery.
1-gastro for the feeding tube
2-ENT for removal of jaw, lymph nodes, etc.
3-oral surgeon to line up new jaw/ plates
4-plastic surgeons for flaps/skin grafts

This is a lot of doctor's to line up so they won't schedule him for another 3 weeks or so. In the meantime, his tumor is aggressive so he is set for a round of chemo to keep it somewhat at bay until surgery.

The biggest concern that showed up in the imaging was the nerve channel that goes directly to the brain is a few mm wider on the cancer side. Though suggestive and not conclusive that cancer is involved in that nerve. that is what has us all scared the most, is that we go through all of this and it comes back right away.

I started reading on the forums yesterday and looks like everyone has a lot of experience. I know that we have a very LONG road ahead!
We are all very close and all live in the same city which I know that type of support is of immeasurable worth but this is the hardest thing we have ever faced together!

Thanks for your advice so far!!