Hi Christine, Anne, Cheryl and David:

Thanks very much for your insights and responses. I really appreciate it, and had a few follow-ups:

Christine, you mentioned: "I am a PRO PEG user. It helped me tremendously! I have all kinds of tricks if you need help with it." Could you either message me

or post some important tricks that come to your mind? Needless to say I have zero experience in this, and anything you share will be all new to me. Based on

your earlier suggestion, I did get my thyroid test done last week. Regarding taking 2500 calories, I am keeping track of the proteins (target is about 70 to

80 grams/day), but not the proteins primarily because I do not know the caloric content in the home cooked Indian food. I was curious how people measure

calories if it is not labeled. The labels on pre-packaged food make it easy to track the calories on; but since I could not track the caloric content for

home cooked food, I gave up tracking calories completely.

I have the fluoride trays made up and will need to learn how to fill them. Regarding the baking soda rinses, do you basically purchase any kind of baking soda? Or is there a special kind.

Appreciate the tip on keeping the PEG clean with saline solution.
Thanks

I appreciate your time and collective wisdom. I cannot imagine how anyone can get through treatment without such support.

Best Regards,
Chetan


Chetan
SCC, lateral tongue, age 53, Tongue resection & neck dissection 5/6/11; T1N2BM0, RTX (35 sessions starting 6/8/11)/chemo (3x starting 6/10/11) Last cisplatin 7/22. RTX complete 7/27. PEG in 6/9/11, out 8/31/11