"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there. To both of you!
Chetan -
A) after chemo you will likely have some nausea... Standard protocol for chemo is - week one you may be tired, & a little sick - week 2 day 10-14 in particular... Try not to hang out in crowded places, or if friends are visiting make sure they aren't sick. Your immune system is taking a beating - so you are more susceptible to getting sick. Thiss goes for eating out and ordering in as well.
B) I'm a Manuka Honey user - it did work for me - check with your dr. If it's okay give it a try- it's meant to clean your mouth - nature's version of hydrogen peroxide. Apparently there was a study done saying that it doesn't cause cavities but if you brush your teeth regularly and use your flouride trays that should help prevent any damage.
C) peg - well there's always a risk of infection - it's an open hole into your body. My suggestion get some saline solution - sterile gauze - every morning when you've showered etc.. Wet the gauze with the saline- wipe around the tube/ wound to keep it clean and apply a dab of pollisporin. Do it at bedtime too.
D) tell your MO you are concerned about the affect on the kidneys - they will tell you what precautions they have in place. And drink drink drink. And yes on the tsh level it's good to know what you thyroid normal runs at.
To Ellen - if you hubby is too thin find out if they'll be putting a peg in. He may need it. The rest of what I said applies to you/ him as well. It's scary but I am sure you will do fine as a caregiver. He'll be tired so just understand, and accept that food is not going to be his friend for a while.
Hugs to you both it's not easy but you will get through it.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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