Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Chetan, I will address some of your conerns.
The Manuka honey is not a tested method of treating mouth sores. It may be helpful, or it may not. There have been a couple recent members who have had success with this. Make sure you discuss this with your doctor before using.
The PEG tube question is a loaded one! There have been many heated discussions with the pros and cons of having one. I am a PRO PEG user. It helped me tremendously! I have all kinds of tricks if you need help with it. A nasal tube is NOT the same, it much more temporary. The PEG tube is a very useful tool to help you get enough hydration and nutrition while going thru treatment. Its best to get it and never use it than to need it and have to wait to get one. If you have a difficult time and need to get one on an emergency basis, it could take a few days and sometimes a few days as way too long to wait. My advice in the PEG tube question is get it now!
Get a thyroid test with your blood work. Its important to know what your regular level is before you begin all the treatments.
The best thing you can do to prepare yourself is to be strong and well hydrated and nourished. No matter what take in a minimum of 2500 calories and 48 oz water every single day! Do not skimp one day and think you will make it up the next, it doesnt work that way. If your blood counts are bad which your doc should be checking on a regular basis then yes avoid public places and become a germophobic person. You wouldnt feel like eating out when your numbers are off anyway. Use caution and wash your hands frequently and always keep the antibacterial gel handy.
Best wishes with everything! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |