 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Ok here we go again...I didn't want nor end up with the PEG and if I were to have to go thru it again I wouldn't opt for the PEG. Now I did have a really really rough time with Cisplatin and nausea so at one point (my first week post Tx) a doc told me that I should try a nasal tube and I did and it really helped me over the hump. I have preached about the nasal tube often over the years and I still don't know why more docs don't offer that as a nonsurgical, just as effective, totally pain free alternative to the PEG. Most of us usually only need feeding assistance for a few weeks so why not have it put in ( 1 minute sitting in a chair) when it's needed and pull it out (I did at home in 10 seconds) when it's not?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| 
