"OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Steve would never drink the 2cal. When his peg was leaking at it's worse Steve said it smelt like the 2cal. So mentally everytime he smelt 2cal he thought of what he'd seen coming out of that hole in his stomach. Steve had a shocking time with that peg but overall we are really glad he had it. But we are just as glad to see it behind us too. One year peg free this coming thursday. Woohoo.
Swallowing wise he never had a problem which I am thankful for. All through treatment, even with peg feeds, he continued to eat icecream and drink apple juice every day. Possibly this helped. Good luck Sandy. I know some people do without a peg but personally from a carer's point of view it does make aspects of caring alot easier.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
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