Hi suzanne.
sorry i couldn't go into detail on facebook,but my family still get a bit antsy with me when this subject comes up.

yeh a few people have asked that question since yesterday but all i can say is she based her report on the records sent to her by the doctors that treated Rob,so they had the information but maybe just didn't interpret it the same way.

As for me,i thought i was really quite clinical about it all now,but it was a sharp shock to know we could have been badly mislead and i know that if Robin was listening in he would be mad as hell that he went through all that crap and died such a painful death when he could have had a choice.

In the Uk we can get a second opinion after going through a lot of red tape,but we don't get to see reports and lab results,so we might not even know we need a second opinion and we dont get to ring up our doctors and speak to them,most times you don't even get to see the specialist personally just one of his staff.


Anyway looking at things through a rear view mirror 4 years on is easy isn't it.

Just like to say how proud i am to know someone who has fought,beaten this disease and produced a new life to boot.Its brilliant that we both still have so many of our OCF family celebrating their years of survival xxxx