"OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | I am so glad that you have posted this on OCF as there is so much that you have written that is of help to those who are or about to go through treatment. It can only be painful for you every time more information comes out about Rob�s treatment and ultimate death. I am so sorry Liz and don�t know what else to write but this must have been a real slap in the face for you (again). I will just add that I do have all my pathology tests because it is a right to have access to your own records here. It initially took a little effort and the help of the head CCC nurse but I have all the results from the initial operation and subsequent biopsies. I was missing the initial report that started my journey but I am again seeing this oral surgeon and it was no problem to get that one added to my collection. Lots of love and a big hug {{{ }}}} Gabe
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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