Liz,

As always, thank you for sharing your personal story. I can't imagine how hard it must be to hear years later that you didn't have all of the facts when Robin was fighting this disease. Is it possible that maybe some of the comments made were made because of knowledge they have now that was not available before? Just a thought....

So, in the UK you can't get a second opinion or copies of any reports, scans etc? That sounds horrible to me....

Even though Robin passed away a couple of years ago I wouldn't consider it ancient history. I hope this new information you have doesn't ruin the healing you have already so strongly endured.

xoxo