| Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | Michelle,
I was treated at Dana-Farber and I think you'll find the doctors & nurses there to be absolutely top notch! If you do get a different treatment plan recommendation, don't be hesitant to ask them why and take all the time you need to get satisfactory answers. My doctors there were never too busy to not answer all my questions or address my concerns.
My experience is they will take the more aggressive treatment path, at least they did with me and will do what needs to be done to a) keep the cancer from ever coming back and b) maintain as good a quality of life as can be achieved.
I think the most important thing, and this is true wherever you are treated, is the best advocate you have is yourself. No one else has as much to gain or lose from your treatment as you do. Ask questions, challenge decisions if they don't make sense and don't let yourself become a passive observer of your care. You have to know what's going on and why.
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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