No matter how intense and scary it is, Go through with it. I will tell you I was scared out of my mind, but am glad I went through everything I did, because I am still alive today.

Only thing I know about BOT is I have not so far heard of anyone having surgery before radiation and chemo.

I know with my treatment i lost 70 lbs, and I was a bit overweight before, so i thought i would be fine, but when you lose the weight, it's not the fat that you would like to lose, it's muscle. so it's really important to eat what you can now and try to stay as active as you can, while you can.

I depended on my peg to get my pills in, and even though I couldn't use it so much for nutrition as I contracted cdiff during my hospital stay when they put it in, Most don't have a problem with it, and they can use it to get a decent amount of calories and fluids in a day.

I had to have a PICC line put in, almost like an iv, but goes straight to your heart, for my nourishment issues cuz of the cdiff that wasn't diagnosed correctly until after i had peg pulled.

I am glad you found this site, and it's tough to say what exactly someone will go through because no two surgeries, treatments, side effects, or people are the same. Everyone reacts differently when it comes to healing time, treatment and meds. But I know the people that have had surgeries or treatment like mine after I did, I was glad to be able to help them when they have had some things pop up, and was happy to let them know what happened for me, so they could compare, and know whether it was a more "normal" side effect, or something not "normal". I always advise to tell your doctors everything that is going on, as they are the best to get info from, but in a way I guess it just made my anxiety a bit easier to manage when I had people on here to talk to.

I will keep you in my thoughts, and hopefully you will be added to the number of people on here that are cancer free still after treatment!!


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010