Hi Michelle Ann, welcome but sorry you have to be here. My husband's diagnosis sounds similar to yours. He had weekly Cisplatin instead of the does of three. Like Christine said, eat everything in sight to put some pounds on before treatments start. John reluctantly had the PEG placed before treatments started convinced he wouldn't need it. He started using it around week 3 and even with it in lost 30 lbs. Hydration and nutrition are very important while you are going through treatments. You have found a great source of support and information. Good luck. As you can see from my signature, John was diagnosed 2 years ago and is doing great!

PS - It sounds like your cancer presented just like my husbands'. He had no other symptoms except for a non-painful lump in his neck. A CT Scan showed thickening tissue at the "base of tongue" and when the ENT withdrew fluid from the lump it came back malignant. My husband's tumor was also HPV+ which is supposed to be good since it responds better to treatments.

Last edited by slim; 01-17-2011 10:54 AM. Reason: content

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2