| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Michele, welcome to OCF. You will find lots of info to help guide you thru your journey. There will be lots of support as well. I dont know the other cancer center you have gone to but I do know Dana Farber is top rated. This is very important. You will want to be treated at a large cancer center where the doctors will consult with each other. They will have experience in treating hundreds of oral cancer patients instead of a handful a year. It is a tough decision to make but it is the most important one in your life. A place that offers what sounds like an easy way to treat cancer may not be the best place to rid you of it for good.
Right now if people are asking you what they can do, write down their name and number and tell them you will let them know when the time comes. You will need help later. Even if its to pick up a few groceries, walk the dog or stop at the pharmacy. If you have children then maybe a friend could take them out to the movies to give you a few hours of quiet. Small things like that will mean alot to you when you arent feeling the best.
Right now you should be eating everything you want and then have seconds. Make sure you have all your favorites. You dont want to go into this with regrets. For a while your sense of taste will change. Dont worry, its only temporary. Also dont worry about weight gain right now. Gaining a few pounds will make it easier for you since most of us lose weight no matter what treatment path we take. I lost 65 pounds and have not gained it back and I began this 3 1/2 years ago.
So tell us more about yourself. How old are you? You can add a signature which is very helpful in getting to know you. Its the block at the bottom of the page under the My Stuff tab. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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| Michelle Ann | 01-17-2011 05:19 AM |
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| Michelle Ann | 01-17-2011 05:43 PM |
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