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| Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Hi Michelle, I'm not familiar with Dana-Farber so can't be of much use in that regard but I'm sure the other guys here will offer you heaps of advice. My husband was diagnosed with stage 4 SCC almost 2 years ago now. It had spread to his lymph glands and jaw bone. I'm happy to say that 17 months out of treatment he's still cancer free. He had 35 IMRT sessions and 3x cisplatin. No surgery as we were advised the cancer was too far advanced. One hospital wouldn't do surgery and the other offered it but when told of the after effects and quality of life he would have afterwards we opted to not have it. I suppose when it comes to different treatment options you just have to research each one (ask lots and lots of questions) and then work out what's best for you. Hopefully the other guys on here will be able to offer you more help. Either way I'm glad you found us all. Here you will find the best support network.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
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