 "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Dear Carol,
What an awful (and as you say chronic) journey starting in 2002 that you have had with this awful disease
You have every reason to be scared my friend.
One consolation is that you have those wonderful doctors that you have faith in. It makes a big difference.
Your situation is not something I have experience with but I know there are some members here who have been through your surgery or similar.
You will be in my thoughts for your Friday tests and Feb 7th surgery.
Love
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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