Thanks Darbi,

Wish all the best for you and your husband. I am really taken back on all the caregivers that are on this forum and contribute their time and energy to help people. It really is something special. I went through photodynamic therapy for 6 months as a clinical trial for the lichen planus and lesions I had on my tongue. That was back in 2005. It was in London Ontario, one of the first to try it on the tongue. Very awkward, had to dab the paste to my tongue for about an hour to make the cells super sensitive to the light. It did not make the lichen planus (precancer lesions) dissapear, but it did not turn to cancer at that time either,so somewhat of a success. I hope the procedure has advanced since then.

Good luck with everything, please post next steps for your husband and if the PDT has worked.


2001 age 30 SCC on LS Tongue, non smoker, casual drinker. Partial glossectomy
2002-2006 yearly Lichen Planus, 8 surgeries, PDT for 6 mths
2007 1/4 glossectomy, neck dissection, radial forearm flap, 18 nodes removed, trach
2009 erythroplakia gums, 3x cut
2011 SCC gums,recovering surgery Feb