One thing I have learned is that some words are easier to spell than to say. I can't even say my last name and just go to spelling it. It sure beats the question, " what did you say" . Most understand what we are going thru. The ones that don't are the ones with the problems.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here