Thankyou so much for your advise as I am in pain all the time now and am getting a little scared that it will never get better. No one seems to say they have it but got better from it. I will ask for more pain meds to take before I stretch it. Its a scary complication!

I have had a bad time but you have been through hell! Good thoughts to you that you may have a long respite from this nasty disease.
Thanks
Tone

lyph node positive 10/08
Parotodectomy 4/09
Rad six wks 65 grey
Pet scan clear 03/10 no primary
Pet 01/10 base tonge primary
CT 3.5 Tumor 01/2010
radical tongue reconstruction
with forearm flap 2/10
severe Trismus 06/10