Thankyou all!!! I will try and answer a few things.
Yes it is very possible that
HPV was a cause but I was told that if it was then survival is better, I have not been tested for it.
The four opps where Parotidectomy with neck disection, removal of some positive lymph nodes but know cancer in any glands at all.
Then Tonsils taken out and heaps of biopsies to try and find primary tumor. this was followed by 65 grays of radiation over 6 weeks.
Then the big one. Positive pet scan so, radical neck disection for tumor in tongue removal and forearm flap graft with vein to reconstruct tongue.5.5 cm mass removed includind margins. More lymph nodes removed all negative for cancer. Two weeks in hospital Tracyostomy.nasogastric feeding tube etc
Finally a minor opp to take a small peace off the side of my tongue to be 100% sure for pathology. all clear.
I can eat yogurt and soup type consistancy but cannot chew as half my tongue is numb and hard to control food in my mouth. My tongue only makes it to my teeth it does not stick out anymore. Hey Ive lived on protien drinks my whole life as a gym trainer so I am geting heavier as have just started back working out at the gym two weeks ago. Protien drinks make up a big part of my diet.
No more radiation indicated and chemo, no thank god! I am at an exellent hospital Royal Perth and have a full team speach, nutrition, physio, surgeons, phycologists, all very kind people. I hope this sort of helps portray my condition.
Gabe your opp was the same lenth as mine 14 hours! is it rude to ask what type of flap complications can happen? Thankyou to every one. Tony