Hi Tony,
Sorry to hear you are going through so much but some of your issues should be resolved in time. If you can answer some of the questions it will help others here to help you. (see davidcpa�s and don's question's). Your major surgery was not that long ago but can you please advise what the 4 operations were? How are you getting your nourishment at the moment? I could not eat anything that was not liquidised but then later could eat roughly pureed and after that could introduce other soft food. Now I am happy to say I can eat almost anything. As you can see by my signature it is nearly 4 years since my operation and I do not understand the statistics that the surgeon is giving you. In the early days I used to beat myself up about them too but with all I have learnt here I know that my use by date is not dictated by statistics! Are you seeing a team of people, how often are your visits and are they and was the surgery at a CCC (Comprehensive Cancer Centre). Sorry to ask so many questions it all helps to reply to your concerns. Jim's advice is always worth reading.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family