Yes I am doing my best with teeth care, floss daily and use interdental brushes brush really well once a day with a high fluride tooth paste and 2-3 light brushings to freshen my mouth. I avoid all drinks with citric acid and drink soda water through out the day to keep acid down and my mouth not dry. The hardest part is opening my mouth, it only opens like one finger thickness wide but I know it will improve.

I and some consultants suspect that HPV could be a cause. What I dont understand is even if I get a test and it is positive apart from a better prognosis can I do anything to hurt the virus so as to avoid it doing the same again. Would a vacine help once infected???

Gabe I hope that flap issue is nothing, and there is that wait again hey.

With where I am at with my condition do you think they will do another PET scan and if so when. My guess is they will wait long enough to be able to see anything that could develop. Like a year???


lyph node positive 10/08
Parotodectomy 4/09
Rad six wks 65 grey
Pet scan clear 03/10 no primary
Pet 01/10 base tonge primary
CT 3.5 Tumor 01/2010
radical tongue reconstruction
with forearm flap 2/10
severe Trismus 06/10