 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I finished rads , chemo and rad seed implants March 2008 and My tongue if anything is burning more than ever and the neck dissection is getting worse too. It even hurts to look upward. I am told that I have very severe radiation burns that cause this and it will never get any better but keep getting worse. I am one that wants the trurh and no maybe,s. My Drs are upfront with me since day one. Take it one day at a time and keep asking questions as to the whys. Good luck. I will live with this and keep smiling because I am alive to feel the pain.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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