 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Bloop, I have one of those beanbag things that you put in the microwave. Not sure if the store is national or not but, I got it at bed, bath & beyond. Ive seen them sold at drug stores too. Every evening I heat it up and then wear it draped over my shoulder. It helps to loosen up the tightness. If cold works better for you, it can also be put in the freezer.
The mouth issues can take a long long time to resolve themselves. I also noticed some differences around the 2 year mark.
That makes 3 of us with the peg in the abdominal wall. That was so painful and the darn doctors and nurses wouldnt listen to me day after day during my long hospital stay.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
