Patient Advocate (old timer, 2000 posts)    Joined:  Jun 2007  Posts: 5,260  |     I do everything I have been told to do for the burning tongue including brushing it 2 times a day, but it continues to burn away as it wants to,. For my neck, in the morning I get the shower as hot as possible and allow the shower to do a massage on my neck an shoulders for a few minutes. I turn my body slowly in a circle and make sure my neck and that area are completely massaged by the heat. It helps for a couple of hours.  Maybe not good,  but for me it works.        
     Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan.  I averaged  about 2 to 3 surgeries a week there.  w  Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube .  Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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