OP Senior Member (100+ posts) Joined: Jun 2009 Posts: 138 | I finished radiation January 22nd. I keep expecting things to get better but they seem to just get worse. My ENT said don't expect things to ever get back like they were, but he didn't tell me my tongue would burn forever. Is that normal? It has me scared that there is more cancer in my tongue. It hurts to move it back and forth even.
And my neck from the neck dissection in September seems to be getting stiffer instead of more relaxed. The ENT suggested physical therapy for that but he talked about massage therapy and I don't think I want anyone pushing on my neck. It is sensitive to touch.
BOT-SCC Partial glossectomy 7/16/09. Stage IV, Rt ND 10/2/09. Teeth out 11/5/09. Port/peg in, 11/20/09. 7 wks rad & chemo, end 1/22/10 lung, colon biopsies 1/9/11 - both cancer colon resect surg 1/10/11 Folfox + Avastin - discontinued 6/11 lung surgery 3/13/12, 5/1/12 mets to liver and bones passed away 9/4/13
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