I got the biopsy results yesterday and happy to announce the PET was a false/positive reading...NO CANCER!!!!!! Now we deal with the plans for surgery. The ENT is talking a mandibulectomy, tracheotomy and left neck dissection. She says she doesn't need to take as much of my tongue as initially thought...now just a small section under the tongue. The neck dissection won't be as extensive as initially thought either.She'll take a few lymph nodes mostly to give the PS as much to work with as possible. I hope I'm interpreting this properly; this is my understanding. As it goes to the trach.. I hope I understand that this is only temporary for the two weeks I'll be in the hospital recovering.
I have also set in motion a request for Medicaid to approve a third opinion at John Hopkins while I go ahead with the surgery plans at Fox Chase which she is estimates to be mid-May. I guess now it is just a waiting game and planning a list of questions that will come up between now and then. Hoping "you guys" can help me with that.
Pat