"OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | Anne
First of all, I am very sorry that you and your husband are dealing with this disease. Secondly, the Doctor sounds like a jerk.
I started to get all the horrid side effects from radiotherapy after the 10th treatment. Everybody is different.
Having radiotherapy following surgery can also cause additional problems with swallowing and ulcers in the mouth and burns on the skin. It can vary dramatically.
I would speak with another Doctor at the hospital and hopefully you will then get the assistance and support that you both deserve.
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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