Don, read your post with interest. There seem to be similarities between our cases, with a few key differences (I'd had my tonsils out as a child, also had no PEG). I however had standard IMRT to your Tomo... which according to what I've read is state of the art.

How did it affect your swallowing, etc.? I've still got a lot of dry mouth 10 months after the end of RT, although it certainly has gotten better (I'm guessing somewhere in the 20-25% range, near as I can estimate). But I'd heard that Tomotherapy was much better at sparing the parotids. I also got a bit thyroid zapped (my TSH was measured most recently at 6.35) so I'm taking Synthroid now. Did your RT affect yours?

Should be very interesting to see how this disease is treated in 10 years!

Thanks,
David II

David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18