Thank you all - we're so discouraged and disheartened. It's a tricky business to get another opinion in a clinic like this, but I will talk to the counsellor about it, as we're seeing her together tomorrow. It's interesting that Karen had bad side effects after week two and Don didn't. Thanks Karen, for pointing out that side effects can be worse after surgery, as no-one at the clinic has mentioned this yet, and Gordon just had surgery in January.

I would not allow this Dr. to discontinue treatment, if it comes to that, just because he doesn't "believe in" the PEG and would definitely demand another opinion about it under those circumstances, and maybe even before that.

Gordon is eating soft food (shepherd's pie with gravy, asparagus tonight) and I think the biggest problem is that he really can't taste anything. However, without the Tylenol, and the Magic Mouthwash I think it would be too painful to eat.

I will look into the ombudsman issue, as that might be the way to go if the situation continues and we can't get some help from the counsellor.

Sorry about the previous post. Will try to remember not to use the return key unless I want a new paragraph.
- Anne