Hello All, this is Pat's sister. I am an RN and was with her through most of her treatment. There are a lot of things that are left out here because so much happened that we couldn't possibly put it all in here but one thing about all this follow up is that the rad dr told us we would be needing to see a head & neck surgeon. Cooper does not have one so the chemo office decided to see if the ENT could do whatever had to be done. Apparently NOT. That is where the whole idea of going to Newark came from so we could see Head/Neck.
The plastic surgeon was very helpful but he really needs to see the final CT before he can have an idea what was to be done. We never get much information from the chemo office. We were rather surprised to learn bone would have to be taken from her to do a graft, we thought it would be the piece of mesh or metal we saw in the book about oral cancer.
Hopefully I will be able to make it back to NJ next week to go to the plastic surgeon again and then we can start looking more into the other hospitals some of you mentioned earlier in these posts.
Thanks everyone for the information and support.