 "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 | Pat
That must have been an unexpected shock. Just remember, that was only ONE opinion.
What were the ENT's reasons that there wouldn't be any reconstruction and/or rebuilding? Who told you there would be more surgery and what sort of surgery? Have you seen a maxillofacial surgeon?
Sorry for all the questions, just trying to get all the info to see which direction would be the best way to go next.
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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