Hi Teresa. I'm so sorry you are both going through this. I don't understand stopping for 4 weeks when he is so close to the end. It took every once of stamina, strength and energy that JOhn had to get him to his treatments the last 2 weeks. His appointment was scheduled for 11am and he barely made it there and it is only 15 minutes from our house. He literally had to have someone help him out of the house, in the car, drive him there and then get him back home. If I was you, I would call the RO and tell him we do not want to stop being this close to the end. Sending you a huge HUG. I can't even imagine how frustrated and angry you are at this point. John did get scoped during his treatments and the RO told us that there was no evidence of the tumor. I didn't take that as being "cancer free". I just read that as the treatment was working.

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2