I am new to this just today. Have been searching for support to help me with my frustration and, at times, depression. Family and friends are loving and understanding yet I feel so alone. I finished treatment on 12/21/09, Radiation and chemo for stage 3 squamous cell. My lower teeth were removed back in September and my tongue and lip have been swollen ever since. My speech is coherent but difficult. I've been told they got it all and now it's a waitng game to have reconstruction surgery to replace my chin bone. That will obviously not happen until after the CT scan scheduled for 2/22/10. It seems such a long way away and it scares me too. I don't really know what they plan to do so I'm left to my own imaginings! I'm home alone all day and my job is to make sure I get enough nourishment thru my peg tube. The swelling in my mouth makes it impossible to eat, I can only drink. I sure do miss real food!


Pat - 62 yr. old -DX 8/29/09 SCC stage III floor of mouth
Lower teeth& bone removed
Port& Peg
Cisplatin x3; Rad 35 - ended 12/21/09
Fox Chase 2nd opinion-mandibulectomy; tracheotomy; left neck dissection; jaw reconstruction 5/13/10; flap failed;new flap 7/13/10; lipo January 2011