Christine and Pat,

Yes, I to have a steel jaw. Like Superman or something. My jaw bone was replaced with my fibula from my leg. Doctor said I shouldn't have any problems walking because it seems to be a "extra". Can you believe our body has extra bones? ha ha So I'm actually walking normally. Coming home from the hospital and seeing my girls was great, I looked different but it was me.

Currently,I'm dealing with trismus. I was wondering if I should try to get the DynaSplint but I heard their expensisve. Right now I'm waiting to get an approval from the insurance company for the DynaSplint rep to contact me.

I don't have to much of an apetite but I'm trying to eat more food everyday. I still use my PEG everyday but I try to drink the Ensure once a day. Yeah, real food I do miss the taste but I appreciate the little bit of taste I do have. When I finished radiation I couldn't taste anything.

I try to spend my days watching funny shows, movies, or just a good book. I read my daily word almost each day. And before this I never really read, ha. I've been journaling some of my experiences and some of the people I've been meeting. So right now in my journal I look back to when I came home and thank God for bringing me this far. I get out of the house to get some sun and air which helps change my attitude. At first I wouldn't talk, until my brother kept on reminding me that I need to tell family/friends how I'm feeling because their not mind readers. So now, I try to let them know when I'm feeling depress or just bad and they try to encourage me. It doesn't always help, but its a start.

We can compare notes just send me a separate email. First scan won't be until April.

Oprah