Hello All,

Just a quick note to say that I finished treatments on the 22nd December and was released from hospital that day. It was great to get home but I did have a tough time up until about a week ago. I still have a naso-gastric tube and have been using that for all nourishment. I am now able to drink water, but my mouth is still in a poor state so I think it will be a couple more weeks until I'm on even a soft diet.

I feel stronger everyday and am getting into a fairly normal sleep pattern. Up until lat week I think I slept, or was in a twilight zone, 75% of the time. My speech is also improving - thick mucous either stopped me talking or dry mouth would.

This time around has definately been more challenging, with a raft of symptoms I never got first time around. I had sticky mucous first time around.....but I had no idea how bad it could get. I swear some of the stuff I was bringing up you could cut with scissors and was rubber band like...UGH. When does that stop??? It seems to be getting better, but it has to be the single biggest annoyance I have.

And PEGS...while I didn't get one I will never be critical of anyone who goes that path. I have vomited up my naso-gastric tube (at home) and had to go into the hospital on New Year's Day to have another fitted and then checked via x-ray that it was in the right spot. Not enjoyable at all!

Anyway that's about it, if any has to be re-radiated I'm happy to answer any questions. It just feels good to finally coming out of that dark tunnel....

Thanks for all the support!

Sue


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva