Rob,

Thanks for the info. I just asked you (in a message)some of the questions you've just answered.

Unfortunately, I have very limited financial resources, so would not be able to travel for treatment. I'm glad you had access to one of the best centers. Even the RO I saw did say that there were much bigger and more comprehensive centers than his, and that he would have advised me to go to one of them if he thought it would mean a better outcome.

Luckily, the first thing the local RO I spoke with said was that he would definately recommend Induction chemo (before I had a chance to bring it up).

The surgeon I spoke with a couple of weeks ago said that treatment would be radiation with concurrent chemo, then surgery to remove my lymph nodes (one involved that I know of). The RO said that he hopes to avoid the need for surgery.

Can I ask - did you use a PEG and port? Which parts of treatment were the most difficult for you?

- Pam





44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18