Truly I appreciate the suggestions and will explore moving to a new treatment site. It took so long for BC/BS to approve this treatment, that the likelihood of being able to do anything about it is pretty minimal. Like most of us through this long, drawn out ordeal, I am sure I will soldier through, but now one yearpost treatment, I really had no idea that the effects would be so long lasting or extensive. The new normal remains an elusive standard.
THis disease gives whole new meaning to pain in the neck.

Best wishes to all,

Bonnie