Good morning all. Sometimes it's worthwhile to go back and re-read the whole thread start to finish. I did that this morning; and was stricken with how things change over time. Who would have known any of this would go the direction it did, who could have ever predicted this particular set of twists and turns traveling down Cancer Boulevard.

Re-reading did remind me of questions I need to ask the RO tomorrow when I get my first rads. Questions about why has he chosen rads only and not rads with chemo; why has he adopted a wait and see attitude about this enlarged lymph node as opposed to a biopsy right now. And since his staff did another neck CT as part of simulation process has he looked at that lymph node in comparison to original CT done roughly 6 weeks ago.

I have to thank you guys for giving me the needed push to get these answers. It's very easy to just sit back and let the doctors do their thing and in the process never get your questions answered. Or you can listen to the patient advocate training that this group does so well and not let those opportunities to ask questions pass.

But I suppose mostly what I want to share is appreciation and thanks for getting to meet such an outstanding group of people, from the technical knowledge of the Christine's, Cheryl's and David's to the how to prepare your mind to handle this battle from Bart and the just plain friendship and warmth of people like Ambra. It has made this journey into the unknown way more comfortable than it would've been otherwise. I don't ever fear what is around the next turn as I know one of you will be standing waiting for me to arrive and pointing out the right direction.

Thank you all dearly. I just hope I can help others as you have helped me.

Tony

Last edited by n74tg; 11-03-2013 06:33 AM.

Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good