WOW! That was an eye-opener!!!

I cant believe one doc says you had one lymph node involved and the other says there were none. Thats just not right!!! From what you said, it sounds like you are not being treated at a CCC. At a CCC you would have a team of doctors who all work together and meet to discuss each individual case so everyone is on the same page. At this point, your treatment team is already in place so switching wouldnt be an easy option.

I suggest you get copies of all your tests and detailed appointment notes from every single office visit from every doc. I would then sit down with the whole mess and try to review it to better fully understand where you are at. If that happened to me, I would have begun asking a million questions right there and gotten to the bottom of my health status. You have to speak up and be your own advocate. Remember those doctors work for you. Having you medical records makes things so much easier if you ever want to switch doctors.

Good luck with the mask today!





Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile