About 15 months passed since my last visit to an oncologist. so last month I went in for a consultation. The onc said based on your charts you are "fortunate to be alive...and it is a good sign that you are experiencing no difficulty breathing or swallowing." She wanted to do a scan to see if the cancer had spread beyond the BOT and lymph. I refused because I think there is a reasonable chance that a catscan I received several years ago, from a miscalibrated machine was the trigger that turned the HPV malignant.

DX in 12/2010. Stage 4 SCC HPV+ BOT swollen lymph. I've spent the past 3 years away from medical treatments. Instead I've focused on good nutrition, active exercise, singing, laughing, oral exercises and such. I've had neither pain nor discomfort. But I haven't been able to kill the cancer. So, I'm now considering robotic surgery and/or radiation.