Hi Seana,
It is normal and it does hurt VERY much. I can remember getting in the shower and crying in there so I was in private. Our guys are angry in the beginning, but Kevin soon got past it and we became a team. I pray this happens for the 2 of you as well. We had a feeding tube and the Cistplatin. I'm not sure where the confusion was there, but very glad it's in because it will most likely be needed.
Our job as the caregiver is a very difficuly one. We have to balance the care of the home, bills, food, children, our spouses...and somehow take care of ourselves too. It's VERY hard, but we are here to help you get through it. Vent here all you want. We've been there.
Please stay in touch.
Blessings,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14