 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | As you can see I had Cis but it was administered in the "Big 3 Bag Method". I refused to have a PEG insurted from the beginning and I never heard from anyone about a warning re Cis but that was 6 years ago. You are also the first to mention this in the 6 years that I have been on this site. All that aside I can't believe they haven't considered the nasal tube vs the PEG. I did give in post Rad and let them put in a nasal tube and I had it for appx 2 weeks (all that I needed). It was quick, almost painless and it did the trick for my stubborn butt.
GET THE NASAL TUBE
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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