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| | Joined: Dec 2008 Posts: 1 Member |  Member
Joined: Dec 2008 Posts: 1 | I've been reading through the site and was amazed that there are people like me wandering around all over. I was diagnosed 10-16-2005 with SCC. I've been through the shredder the last few years but I'm getting through it. I just found this site after another one shut down so all my history is on it. But I will try to recollect info and post it. | | | | | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | We welcome you -- tell us your story. This place is a family and we can all relate to one another. We've all gone or are going through OC. I'm a caregiver and some days are very difficult as I watch someone I love go through all this. When I am down, I come here for comfort. Claudia
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | As Claudia said...welcome, please tell us your story. You can start your own thread and then all responses will be to you. This is a wonderful, welcoming and warm home. I'm happy you found it.
Claudia, you bring much comfort to others....we are lucky you are here.
Suzanne
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T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Welcome to OCF. The shredder is a good description of what we go through isn't it?? I know that you will find support and answers here.
One of the best parts for me is that these are people like me, who understand. I hope that you will share your story with us.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | Has anyone heard from Sue ?
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
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