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| | Joined: Dec 2008 Posts: 1 Member | | Member
Joined: Dec 2008 Posts: 1 | I've been reading through the site and was amazed that there are people like me wandering around all over. I was diagnosed 10-16-2005 with SCC. I've been through the shredder the last few years but I'm getting through it. I just found this site after another one shut down so all my history is on it. But I will try to recollect info and post it. | | | | | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | We welcome you -- tell us your story. This place is a family and we can all relate to one another. We've all gone or are going through OC. I'm a caregiver and some days are very difficult as I watch someone I love go through all this. When I am down, I come here for comfort. Claudia
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | As Claudia said...welcome, please tell us your story. You can start your own thread and then all responses will be to you. This is a wonderful, welcoming and warm home. I'm happy you found it.
Claudia, you bring much comfort to others....we are lucky you are here.
Suzanne
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T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Welcome to OCF. The shredder is a good description of what we go through isn't it?? I know that you will find support and answers here.
One of the best parts for me is that these are people like me, who understand. I hope that you will share your story with us.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | Has anyone heard from Sue ?
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
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This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
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