Hi! I'm new to the group. My journey started in Sept. 08. Had swollen lump on neck. Thin needle biopsy was negative. After removal, turned out to be malignant. Had radical neck dissection the next week. They found the primary in my tonsil. Two weeks post-surgery, I traveled cross country to Washington D.C. for work. I started having very blurred vision. Went to John Hopkins because they have a great vision center. It turns out that I had major spinal pressure building up. When they took out my jugular, they of course were unaware that I didn't have one on the other side. This caused blood to build up in my head. Took several spinal taps and meds to save my vision. After 5 days in the hospital, got to return to Seattle. Shortly thereafter, I experienced sudden hearing loss in my rt. ear. Steroids took care of this problem. I did 7 weeks of radiation, ending Dec.30, 2008. I got the feeding tube out last week and am slowly starting to eat soft foods. Best thing is I'm starting to get a little energy back. Beginning to feel like me....now if the edema in my waddle would go away, I'd be truly happy.


Kevin
Sept 2008: SCC, Rt Tonsil & 2 Lymph nodes, Stage IV
Radical Neck Dissection, 35 session radiation
Positive HPV
PEG tube....should have done earlier. Lost 40 lbs.