#89378 02-02-2009 07:30 PM | Joined: Feb 2009 Posts: 4 Member | OP  Member
Joined: Feb 2009 Posts: 4 | Hello all. I was diagnosed with Squamous Cell Carcinoma of the right lateral tongue three years ago. I had a right partial glossectomy, a saliendectomy and a modified right neck dissection. All margins were clean. This December I noticed a lump again and had a excisional biopsy on 12/31/08. The cancer is back. I had my fourth of 25 intensity modulated radiation treatments (IMRT) and my first of 3 cisplatin treatments. The plan is to follow that course and then have a temporary seed implant to finish everything off. The doctors are hopeful and I feel like a deer starring into headlights. Also, the tumor is larger and deeper this time, already 2.5 or so cm and at the base of the oral tongue. I wish all of you peace and well being. Sincerely, Jay Lenhart/Pittsburgh, PA
Last edited by PittsburghJay; 02-02-2009 07:31 PM. Reason: spelling
| | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | Welcome Jay...sorry you had to find this forum but there are great people on here with lots of answers and support.
Cheryl
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | | Joined: Jan 2006 Posts: 101 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2006 Posts: 101 | Hello Jay, Glad you found us here- if you look at my signature, you will see that you and my husband have been in about the same place. If you have any questions please make sure you ask any of us on here. Most have enough info to share-and what one doesnt know- someone else does!
Lots of support and love your way-
Jennie
Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads.
Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol-
3rd reoccurrence 5/18/12- partial glossectomy
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | No fun getting the bad news second time around -- We are here and we really do feel your pain -- I hope this course of treatment will be effective -- Plenty of info on the side effects to find, or just ask away!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | Hi Jay. Sorry to hear "it's back". My husband had surgery march 08 and another growth now in his jaw in less than a year. Our next treatment is going to be the cyberknife within the next few weeks. I wish you well. Let us know how you are. We are from New Castle Pa. Who did your surgery in Pgh ? Dr. Ferris ? Thoughts are with you. Claudia
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
| | | | | Joined: Sep 2008 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2008 Posts: 27 | Hi Jay - so sorry to hear that your cancer has returned. As you can see from my name, I too am from Pgh. Are you being treated at Hillman?
Caregiver to husband, 44, nonsmoker, nondrinker
Diagnosed 7/15/08 with BOT SCC, stage IVa.
Two positive nodes removed
Cisplatin and erbitux ended 10/15/08
Radiation over 10/20/08
Back to work 11/24/08
PEG out 12/9/08
Scans 12/2008 and 3/2009 Clear
| | | | | Joined: Dec 2008 Posts: 20 Member | | Member
Joined: Dec 2008 Posts: 20 | Welcome!!
From one healthcare worker to another, glad you joined us!
Wishing you all the best.
Kat
59 yr old female Rad Tech T2N0M0 lt tonsil
IMRT x 35, no surg, no chemo.
Last treatment 11/18/08. Dealing with L'Hermittes sign presently.
Oct 2010 swollen nodes on rt. side. Biopsy: positive SCC
Jan.20,2011 radical neck dissection(6 hrs.) tonsillectomy on rt. finished 30 treatments Apr.27,2011.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Are you, were you a tobacco user? Have they tested you for HPV? What's your age? Did they consider smaller weekly doses of Cisplatin which seems to lessen the potentially severe side effects that usually come after Txs 2 and 3?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Hi Jay and welcome to the board. There are many of us who have been through this twice, so if you have questions perhaps we can be of assistance. In the meantime, you sound very "together" and on track. Let us know how you are making out.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Hello Jay and welcome to OCF. Sorry to hear that you are faced with round two though. There is tons of information and also tons of support here. Glad that you found it.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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