| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
I dont think I missed this, but sorry if I did. Where exactly is the spot in your mouth located? How long has it been there?
My cancer was a complete shock to me. I thought mine was a canker sore. Not trying to cause you any worry at all, just checking your symptoms. From my experiences here, dont think oral cancer is a heredity thing. I do know of one person here who has had several relatives with it, but thats the only one.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 97 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 97 | Hey, CCMominVA!
The one thing that I did for myself during treatment and recovery was to finish one of the degrees that I had been pecking at for years!
While I probably won't ever use the degree at my age, it was a good distraction and victory while I battled "the dragon". Don't give up your life goals, even if you have to delay them.
The cheers of my students, friends and family as I gimped across that stage still echo, and I might just finish other degrees that are nearly complete as well.
And as a teacher, I want to say...
Get to the homework! I wanna see an "A" [[:-)
UncleVern
ENT conjectures before, no PET approved by HMO. Metastasis 11/06. CT 2/07: mass RT sub-mandibular gland. 7 CM mass/tonsil, base of tongue removed, biopsies 2/07 and 3/07. Vein lost, RT face numb. PET scan: spot in chest, un-investigated. Oral surgery 4/07. 3X Cisplatin and 32X IMRT from 4/07-5/07.
| | | | | Joined: Jan 2009 Posts: 11 Member | | OP Member
Joined: Jan 2009 Posts: 11 | Hey there! The lesion is located behind my bottom row of teeth, on the inside of my cheek (sorry, don't know much about the anatomy of the mouth) on the left side. Not painful, not raised or bumpy, just white in color. The dentist was definitely taken aback, took lots of pictures and had some of the other techs come in to take a look. UncleVern, good for you! Even when my Dad was dx'd with ALS, he continued on and finished his doctorate! I am definitely working towards that A and have continually been on the dean's list! Now, back off to my schoolwork!  | | | | | Joined: Jan 2009 Posts: 97 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 97 | Now just imagine this balding old indian dressed up as a cheer leader... LOL "Cee Cee - emm oh emm - eye en - vee Ay, oh yeah! Go team!" [{;-) http://s304.photobucket.com/albums/nn165/UncleVerns/
ENT conjectures before, no PET approved by HMO. Metastasis 11/06. CT 2/07: mass RT sub-mandibular gland. 7 CM mass/tonsil, base of tongue removed, biopsies 2/07 and 3/07. Vein lost, RT face numb. PET scan: spot in chest, un-investigated. Oral surgery 4/07. 3X Cisplatin and 32X IMRT from 4/07-5/07.
| | | | | Joined: Jan 2009 Posts: 11 Member | | OP Member
Joined: Jan 2009 Posts: 11 | HA HA HA Vern! That really made my day! | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | It's the one of Ivy with the buttons that gave me a laugh 
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jan 2009 Posts: 11 Member | | OP Member
Joined: Jan 2009 Posts: 11 | Ivy is great! I love it...such a smart idea! I'm not sure if I'm looking for things now, but there is another lump at the roof of my mouth....will be calling the dentist today. | | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | LOL! Loved the pics!!!! Ivy is a real "looker".
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | | Joined: Jan 2009 Posts: 11 Member | | OP Member
Joined: Jan 2009 Posts: 11 | Alright...well, went back to the dentist yesterday for other issues stemming from the antibiotics he had me on. He asked me to go ahead and come in so he could take another look. It's still there, not changing from the medication, so it will be biopsied for sure. He changed the date from the 13th to the 12th, so looks like I'll be in next Thursday!
Thanks everyone for the replies and support, and I'll be sure to be back to update!
How long does it normally take for biopsy results? I forgot to ask the dentist about it! | | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | That's the hard part -- Can be as short as a few days up to a week.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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