Previous Thread
Next Thread
Print Thread
Page 12 of 18 1 2 10 11 12 13 14 17 18
Joined: Dec 2008
Posts: 1,004
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Dec 2008
Posts: 1,004
Hi Pete,

I don't know how I missed this thread!! I'm sorry I wasn't there to wish you well. Sounds like your spirits are good and that is important!! That sure does sound like a lot of fluid..you're right. Who cares if it normal or not...as long as no infection.


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Nov 2005
Posts: 1,128
Pete D Offline OP
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
Nurse has been coming by every day at first to be sure I was doing everything right, then switched to every couple of days.

I just make up stuf for the rats to play with, cardboard boxes, etc., plus a hanging basket they can all sleep in. I may get one of those traveling balls.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Joined: Sep 2008
Posts: 489
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Sep 2008
Posts: 489
Glad to hear that the nurse thinks that you are doing well enough for some alone time. There is nothing worse to me than to have someone hover and keep me from doing my own little routine. Do you think that you will get the trach out soon or do you still have a lot of swelling in your neck?

I am surprised that they all sleep together and in a hanging basket. I would have thought that they were more independent and that they would sleep on the floor of the cage. Interesting. It would be fun to make them one of those models that they make prior to building an office complex and let them play in that. The one at the county office I was at yesterday has little trees, cars and all kinds of miniature things that they could play with. Be sure to let me know when the little one stops licking your hand and no longer thinks that you are sick.

Rest up and enjoy the weekend. I hope that your weather is nicer than mine.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Hi Pete,
You must be doing OK if the nurse is now coming every 2 days?
Continue to improve and enjoy the entertainment provided by your furry friends.
My feathered friend had lovely holidays with me until last week when I returned to work. With all 3 seperate trips taking my Mum and Dad he enjoyed the car trips sitting in the back with Mum (81) where they both entertained each other crazy
Cheers
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #88913 01-25-2009 04:10 PM
Joined: Nov 2005
Posts: 1,128
Pete D Offline OP
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
I'm guessing that the doc wants to leave the trach in as a precaution against something bad happening -- I will rely on his judgment (He does 2-3 free flaps a week; I do 2 per lifetime).

For some reason, this bunch of rats prefers to sleep on the highest shelf, rather than the bottom. With a previous group of females, I bought a couple of finch baskets and hung them high -- If warm weather, they would each sleep alone, but if cold, they would all squeeze into one basket -- Amusing to sometimes see three tails hanging out of three baskets!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Joined: Aug 2008
Posts: 716
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 716
So, instead of a "Three dog night" it's a "Three rat night"?


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Joined: Nov 2005
Posts: 1,128
Pete D Offline OP
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
Just returned from followup visit and some bad news -- Nurse had smelled infection and put me on anti-biotics, but it seems that part of the blood vessel system in the front of my flap has failed and some of the flap was dying -- She excised a lot of of the "mobile" flap, about a third of that part of the tongue, right down to the floor of mouth, leaving a large crater all the way back to the molars on one side -- Plan is to leave it alone and see how it grows (apparently thigh flesh rejuvenates well).

With my body no longer trying to salvage the bad area, the rest of the healing should improve rapidly.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Joined: Oct 2008
Posts: 251
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Oct 2008
Posts: 251
[quote=Pete D]With my body no longer trying to salvage the bad area, the rest of the healing should improve rapidly. [/quote]

Pete,
So sorry to hear about the set-back. But leave it to you to turn a negative into a positive!

Here's wishing you a speedy recovery.

Smooch the little critters for me! (Oh yeah, one for you too!!)


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
RPCV #89048 01-28-2009 12:05 AM
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
Patient Advocate (1000+ posts)
Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
Sending all good thoughts to you for prompt and complete healing.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
RPCV #89049 01-28-2009 12:06 AM
Joined: Mar 2008
Posts: 404
Likes: 2
"OCF Down Under"
Platinum Member (300+ posts)
Offline
"OCF Down Under"
Platinum Member (300+ posts)

Joined: Mar 2008
Posts: 404
Likes: 2
Pete,

That is the sort of news nobody wants to hear at any time, let alone after what you have been through.

I hope the antibiotics do what they are designed to do and destroy any infection as soon as possible.

Take care

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Page 12 of 18 1 2 10 11 12 13 14 17 18

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5