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Gabe #88486 01-20-2009 02:20 AM
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Pete D Offline OP
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Healing is coming along about as well as can be expected -- Still have all the machines, although the air mister is making me quite chilly -- The suction machine is very useful! Hope I can get rid of this trach pretty soon -- Doc wants it in there in case anything goes wrong and I do see that the throat swelling is going down a lot slower than with the previous surgery, so I will continue to defer to his judgement -- Followup visit tomorrow.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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Posts: 531
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Wow Pete being submissive there's one for the books. Just kidding I am glad you are listening to the doctors. I am also glad to hear you are doing ok...Getting better and stronger every day. I am just for the record proud of you. Keep up the good work and soon you will be sans trach and sans machines. You'll have to hum yourself to sleep. But this is a good thing..Take care


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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Must have caught him with just the right amount of meds Dianne.

Glad to hear that you are getting stronger Pete. Keep it up we really need your input here.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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Nice to hear you are following doctors orders. Sounds like good progress is being made. Swelling after surgery can be expected. Unfortunately it never seems to go away as quickly as we would like. Be careful with the swelling, it can also be a signal for an infection. Glad you are seeing the doc tomorrow, they will check it out to make sure your doing ok. Hope you have a good check up.

Hows the critters? Did you replace the expired one yet?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2005
Posts: 1,128
Pete D Offline OP
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The nurse took another six 60cc syringes of fluid out yesterday. We are watching carefully for infection, but no signs beyond the fluids.

The visiting nurse assigned to me is a good one.

I won't replace the expired critter -- Bringing a new one into the colony is really asking for new diseases and it's especially difficult when all are males -- That's why I wanted to start with four of them.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Joined: Sep 2008
Posts: 489
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Posts: 489
Pete

That is quite a bit of fluid! Happy to hear that you have a good visiting nurse and to know that someone is helping to look after you.

Are the critters in cages or do they have something more like a real rat home?? Just curious - I have never known anyone with rats before.

Have they said when you can get rid of the trach?

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Joined: Mar 2006
Posts: 114
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Wow 60cc....but glad to hear you seem to be doing well. Lots of people out here obviously care for you and wish you a speedy recovery! Get well
-Steve


Age 41 - Stage 2 SCC tongue Dx 2/06. Cisplatin x3, IMRT x35. Mets to neck node discovered 7/07. RND 40 nodes removed, margins not clear. Cisplatin, Taxotere, 5-FU Fall 07, then IMXT/Erbitux for 7 wks. Inoperable mets to both lungs and pleura Dx Oct'08. 4 cycles Carboplatin, Erbitux, 5-FU so far.
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Pete

Are you feeling ok? Good thing you like your nurse, that always makes things easier. Is that amount of fluid a normal amount?

Hope you feel better everyday.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2005
Posts: 1,128
Pete D Offline OP
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Joined: Nov 2005
Posts: 1,128
I have no idea if it is normal, but as long as it's not infected I don't care much -- It was ten of those big syringes full so far!

Rats are in a nice, multi-level cage in my bedroom with ramps between levels,

http://www.martinscages.com/images/full/h-600hr.jpg

doing their rat stuf at all hours of day or night -- They have short sleep-awake cycles, unlike hamsters or G-pigs -- I try to keep a bunch of stuf in their cage to keep them busy, but sometimes have to weed out the noisy stuf if they start throwing it around -- It's amusing to watch them sorting out dominance difficulties -- The smallest, but most curious and pushy, rat has been licking the back of my hand which I take as a sign that it knows I am sick.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Joined: Sep 2008
Posts: 489
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Sep 2008
Posts: 489
You are probably right Pete. Animals know when we are sick and they can read our emotions too. My dogs do some pretty strange stuff when I am feeling sad that makes me laugh and my female "tends" to me by licking my hands and following me everywhere when I don't feel well. The rat cage is pretty cool. I am assuming that they are not real big, only a couple of pounds each?? They must eat a lot if they are active most of the time. It would seem that they would burn a lot of calories. Do they play with special rat toys, those balls with bells made for cats or just anything??

I hope that the swelling in your leg is starting to go down and that it stays uninfected. Does your nurse come by daily? Keep resting and taking care of yourself and you will be back on your feet soon. Thinking of you. smile

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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